Swiss Rare Disease Registry (SRDR)

The Swiss Rare Disease Registry (SRDR) is a national registry, which enables the recording of rare diseases. In Switzerland, approximately half a million people suffer from a rare disease. Epidemiological data such as prevalence, incidence, or prognostic data for rare diseases are key to improving health care planning for patients affected by rare diseases. Data collection on a national level is necessary to obtain representative results and sufficient statistical power in the case of rare diseases and allows for international collaboration.