Swiss Rare Disease Registry (SRDR)
The Swiss Registry for Rare Diseases (SRDR) is a national registry that enables the recording of rare diseases. In Switzerland, about half a million people live with a rare disease. The SRDR provides epidemiological data on rare diseases in Switzerland, allows an evaluation of the quality of care and can indicate where the need for action is greatest. The SRDR also aims to promote the harmonization and integration of data and methods between the myriad of existing disease-specific registries, to strengthen the exchange with international rare disease registries for research and policy purposes, and to provide a network for the exchange between patients and caregivers.
More information go to: www.raredisease.ch